And Yet She Persisted . . .
BraveMom FragileHeart seeks to empower, equip, and inspire through stories mothers and caretakers of children and adult children with special and specific needs.
I'm in the vicious void cycle again. You know, the one where:
There's something not quite right
You go to your PCP, and they recommend a specialist, but they need to send a referral
It takes them weeks to send the referral
It takes weeks for the receiving doctor's office to schedule the appointment
The scheduled appointment is months (if not a year or more away)
You get to said appointment, and upon conclusion, are no closer to an answer, and guess what . . .
You get to start the process all over again.
Vicious. Void. Cycle.
Now imagine going through this for years and YEARS and YEARS. And there's no one in your immediate circle to vent to or solicit advice, so you believe you're alone.
Occasionally, you feel brave enough to share your journey with the folks around you and hear the far-reaching sentiment of the pointed, "Have you thought of this?" "Have you thought of that?" or "S/he seems fine to me," or "It could be worse." You listen to this will while everyone around you is suggesting you don a happy disposition and pray for what you need, but as one of the mamas from our October BraveMom FragileHeart Meet Up so eloquently stated, "When you don't know what you're looking for, you don't know what to look (ask) for."
And this is why I started the BraveMom FragileHeart Meet Up and created the newsletter. There are -- finally -- some resources available on the web and social media platforms where mamas can connect to ask questions and discuss their journeys -- and they're lovely. I think about the mamas whose babies are in their twenties or thirties or older and didn't have access to such resources. Yet they pressed on.
And so must we because despite the vicious void cycle, we've got kiddos depending on us.
Admittedly, I get tired. I am exhausted - this journey's mental and physical aspects can take its toll.
And sometimes, I find myself praying for ease, for soft spaces to land and sit and just be. At other times, I pray for the full strength of God's armor and the will to soldier on.
And a small part of me entertained the what-if scenario for a long time - the one where you imagine how your life would be if things were different.
Yet, we must go on because we've got kiddos depending on us. What about you, mama? Do you have a vicious void cycle story? Tell me. I love hearing from you.
x - Cynthia
Thank you for reading and being here, please share this with another brave mama who could use the support.
What’s Next?
Connect with us online at the next Meet Up on November 2, 2023.